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47 thoughts on “Hair Loss In Women of Color: Central Centrifugal Cicatricial Alopecia

  1. Just had a biopsy completed and I wish I would have gotten the right diagnosis years ago. I went to see a dermatologist 2 years ago and she said I had male pattern baldness, my new derm says he can see what looks like scarring alopecia. I am waiting on the results. I love that the clinicians in this video comment on how traumatic hair loss can be for women.

  2. I started with a small, tight scalp. I had gone home to be with my mom for a procedure and my childhood beautician noticed the spot. Originally we thought it was a thyroid issue. At 1 point my doctor also agreed with the thyroid possibility. He sent me to an endocrinologist who stopped seeing me when I couldn’t pay my $500 deductible. Years passed and the thinning got worse. Now here I am 7 years later FINALLY just getting an actual diagnosis of CCCA. I’m praying for a cure….it’s very depressing.

    1. @AYYB Hi! This is the one I’ve been using for the past 9+ months. I take it orally and apply it to my scalp. My crown has completely grown in now. I pray you experience the same results: Carlyle Pumpkin Seed Oil 16oz Organic Cold Pressed | 100% Pure, Extra Virgin | Vegetarian, Non-GMO, Gluten Free | Safe for Cooking | Great for Hair and Face

  3. Why am I crying
    I’m still young in my early 20’s and I can’t even afford a gynaecologist
    But it’s OK
    Thank you a lot fit the information

    1. Honey dont cry…we just have to find the right dermatologist that care…i been getting injection along w/ the hair oil they prescribe…not doing much for me…just a Little thickness in the back…stay strong and pray will get a caring dermatologist

    2. I don’t know you sis, but I know that there’s nothing to hard for the Lord. His word said with man it’s impossible, but with God ALL things are possible. Meaning, that it’s possible for God to grow your hair back even if your dermatologist tells you different. I rebuke ALL for.s of alopecia and I pray that God touches your hair follicles and removes all diseases., toxins, yeast, fungi, and bacterial infections in the name of Jesus. I plead the blood of Jesus against ALL that’s attacking your follicles and I command it to be thou removed and cast back to the pits of hell in Jesus Name. I declare and decree by the authority of the Holy Ghost you are heal in Jesus Name.
      NOW WATCH GOD !!!!

    3. You probably mean dermatologist- that’s the doctor who helps with skin and scalp issues. The gynecologist is a doctor to see for female issues dealing with vaginal health, menstrual issues and childbirth.

    1. @Make Money Online Simplified!! exactly. I don’t believe they don’t get training regarding abnormalities of the scalp they are even probably taught to recognize what could be a skin cancer and should alert the client of this problem. A child could tell Mommy if he notices a bald spot in mommy’s head. The untrained knows that that’s an abnormality or something out of the ordinary for that particular person. They are probably the first to see things change because they know our scalps So well. I can’t see every area of my scalp but they can and when they know you well they know when something has changed and should alert you. What you do with that information is then up to you.

    2. My beautician told me: “hormones, my blood pressure medications, could be a number of things”. So glad I went to Dermatologist!

    3. Same, I was natural for six years got tired of dealing with my thick hair went to a beautician and asked her if it was safe for me to get a relaxer even though I told her my hair would shed like crazy. Do you know this lady still said it would be fine for me to get a relaxer. My hair is horrible now, I have a big circle in the crown of my head that is so thin. Some days I don’t even want to comb my hair because the shedding just brings me to tears. I don’t even know if I have alopecia I’ve been dealing with this for about 3 years but I finally worked up the nerve to make an appointment with a dermatologist.

    4. I have now found out 3 other close female family members have this problem CCCA but never spoke of it until I opened up.

  4. I am really glad that I’m getting treated for this. I have kept the hair on the top of my head, with very little balding. I’m trying to figure out how to keep my hair healthy because it is fragile and the medicated shampoo strips it.

    1. After the medicated shampoo use a moisturizing shampoo like creme of nature and then deep condition it’ll help

    2. @Tasha Jones I already do that. I didn’t write about my routine, though I appreciate the suggestion.

    3. What did the doctor prescribe for you to help slow the progression besides the medicated shampoo?

    4. @Shannon Smith I get steroid injections and use two topical solutions that keep my scalp detoxed.

  5. I need to find me a black germatologist because one I am going to is white and old. He gives medicated shampoo and some oil. I had been having a lot of itchy and one spot in front is getting thin. How about black men. My husband has a bald spot. He does not want to shave all his hair. He does not want to wear wig because of the glue

    1. OMG. THE SAME EXACT THING WITH ME. I went to my first appointment and they said it would grow back but ive lost more hair. Got the same meds, I’m gonna try blackskinandhaircare. I gotta before imbald and cant regrow my hair,

    2. When it’s itching in that area the hair there is gonna start coming out. Keep it washed and use jojoba oil it helps with the itching I’ve had this now since I was 19 I’m 36 now.

  6. it’s important also to get more than one opinion. i went to one dermatologist and she told me i had alopecia i refuse to believe it went to a another dermatologist she took a sample of my scalp, the results came back as lichen planus of the scalp which is a autoimmune disorder. i was relieved but sad because their is no cure, they don’t know what causes it but it can be treated.

  7. Recently, at 55 years old, I saw another Youtube video like this, and I knew I had CCCA. Visited a dermatologist only to tell me what I already knew. Many women have warned me about the injections and steroids. It doesn’t work. I never had any pain, etc., only itching but not severe. I never wore any styles that cause tension but I relaxed my hair through my 20’s, 30’s & 40’s. I went natural in my late 40’s. By this time I already had scarring. Searching for a natural way to treat inflammation and slow down hair loss. Praying about what to do next. It’s hot and I want to come out of my wig. Feeling fed up. I might as well have fun and play with the hair I have.

    1. Francine, I hear you! I was diagnosed with early scarring alopecia in January and started a journey of healing. The inflammation was one of the biggest factors and after praying (and crying) I decided to tackle it with nutrition and my hair is regrowing. I just started a YouTube channel to share what I’ve learned and to hear from others.

  8. My hair did not start to come out until i became pregnant. After i had my son. 1 year later my crown of my hair had broke off. But it grow back and now that’s what it does. It grows long and than breaks off.

    1. It could be an electrical problem. Your blood pressure might be too high. Do you feel like these tingling zings and zaps, then the itching, and then it breaks off real low like at around 1/8 of and inch? That’s what mine did. So here’s what I did at age 40
      Stop getting relaxers.
      Do a big chop.
      No add in hair, weaves or wigs
      Get your blood pressure under control
      Use Nizoral shampoo on your scalp ( and follow with a deep conditioner for the hair) Seal with an oil.
      Take B vitamins
      Pray

  9. As a new cosmetologist it’s not our fault this isn’t our scope of practice. We can recommend you go because we can’t treat disorders of the scalp.

  10. In 2013 I saw a dermatologist (white) who tested me and told me I had alopecia. I didn’t believe him! My hair was shredding and wasn’t growing fast like it normally does and I summed it up to stress. Earlier this year I started taking it more seriously so I went to a new stylist who’s focus was natural healthy hair. She told me it didn’t look like alopecia but just aging. I cut my long hair off and started wearing a pixie style. A good hair cut stopped the shredding although hardly no growth was happening. Finally I decided to search for black dermatologists and I did find one but, unfortunately she was over 100 miles from me. I started going to her and I was diagnosed with CCCA. Her treatment are the shots every month and apply some hair serum and an ointment 3 times a week and of coursehair vitamins. It’s going on my 3rd month and still no growth and my hair is shredding MORE! My dermatologist said I wouldn’t start seeing anything until about 6 months. Lord please bring your miracle. I would love to read about a true success story.

    1. sgayle64

      I have been diagnosed with ccca too. It’s been very very depressing. Can I ask have you seen any progress with your treatments?

  11. Neither of the women interviewed look well. Look at their eyes – sort of vague, tired, and unfocused. All this talk about hair loss and giving it some fancy medical name does not address the fundamental question. Why are so many Black women suffering from poor health?

  12. I went to several Black male dermatologist and NONE diagnosed it. Finally a young Black female dermatologist did a biopsy and determined this was the diagnosis. It was too late to stop the scarring. My stomach could not tolerate the oral meds used. I wear wigs. PLease my sisters get to someone that cares and is educated in this. I had so much hair in my youth. It took about 20 years to see the results. Hairdressers are not doing their job. Also, not every dermatologist knows what they are doing. I WENT TO SEVERAL.

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